Merryn Furgesson (fysiotherapeut) vertelt in de vorm van een dagboek
over de impact die ME/CVS heeft gehad op het leven van haar tienerzoon Chris.
What is Wrong with ME –
A Case of Childhood Myalgic Encephalomyelitis:
The Illness and the Controversy
Uitgever: The Grimsay Press
Verschijningsdatum: 19 september 2012
ME is the most common cause of long-term absence from school.
A mild case causes regular absences from education, social life and sport,
a severe case leaves a young person housebound or bedbound for years.
So why is ME surrounded by a lack of understanding, even within the medical professions?
During the three years when her teenage son Chris could not go to school,
Merryn Fergusson kept a diary - which here becomes the remarkable and candid story of ME
as seen through Chris's eyes and through the experiences of his mother, family and friends.
The book also traces the history of ME from the 1930s and
the emergence of the medical controversy over CFS/ME.
It is a controversy which baffles sufferers and their carers,
the tragic consequences of which can be the forcible removal of young people from their homes and families.
Merryn Fergusson is a practising physiotherapist
who has lived and worked in Cornwall, London, Edinburgh and Ayrshire before moving to Galloway in 1999.
She has been interested in ME, especially as it relates to children and young people, since 2001.
She is married to Alex Fergusson, MSP for Galloway and West Dumfries.