stelt Neuffer bij elke afwijking wel telkens de terechte vraag, namelijk waarom?
Ook zijn constatering dat vrijwel elke wetenschapper naar ME, CVS en fibromyalgie kijkt
vanuit één invalshoek en zijn (deel)verklaring als dé verklaring ziet, onderschrijf ik.
Voor de website van Dan Neuffer, klik op onderstaande afbeelding:
Een video van Dan Neuffer over zijn zoektocht en zijn boek treft u hieronder aan.
Unraveling the cause of chronic fatigue syndrome and fibromyalgia?
By Dan Neuffer on February 24, 2013
Dan Neuffer, a recovered patient,
spent years trying to build a big-picture view of this illness.
In this provocative blog he argues that
researchers often get too wrapped up in their specialties
to see the forest for the trees and that
there really is a 'single' cause for this illness…
and it's staring everyone in the face.
...
While there are a huge number of scientists and researchers
writing papers and doing investigations on this illness,
most look at the illness from one aspect of medicine;
the aspect they are specialists in.
...
After my decision to find answers to some hard questions,
I spent a lot of time reading.
Not books about the illness,
but basic physiology and biochemistry as well as research papers.
My background is not in medical science or biochemistry;
it's in physics, specifically optoelectronics and laser systems.
So it was all a whole new language to me.
However, over a period of time, by applying some sound logic to what I learned,
I believe the mystery of this illness unravelled before my eyes.
The word CAUSE!
Sounds simple, but actually needs some consideration.
Consider this:
A boy falls and his arm breaks. What is the Cause?
The impact on his arm during the fall? (do you stop here?)
His low bone density that causes his bones to break easily? (do you stop here?)
The wrong mineral composition that led to low bone density? (do you stop here?)
The specific reason that led to his poor mineral composition?
And so it is with CFS/ME and Fibromyalgia:
Yes, low cortisol contributes to fatigue,
BUT WHY IS IT LOW?
Yes, killer cell abnormalities lead to poor immune function,
BUT WHY ARE THEY ABNORMAL?
Yes, inflammation contributes to pain,
BUT WHY DO YOU HAVE INFLAMMATION?
Yes, mitochondrial dysfunction and nutrient deficiencies cause metabolic dysfunction,
BUT WHY DO YOU HAVE
MITOCHONDRIAL DYSFUNCTION AND NUTRIENT DEFICIENCIES?
Yes, methylation creates problems
with neurotransmitter production and countless other processes,
BUT WHY DO YOU HAVE METHYLATION PROBLEMS?
Yes protein deposits on nerve 'gates' may cause fibromyalgia tender points,
BUT WHY WOULD WE GET PROTEIN DEPOSITS?
In order to really identify a "CAUSE",
surely we have to look at the ROOT CAUSE.
The reason for the problem,
the problem that causes ALL OTHER PROBLEMS.
The problem that leads to ALL the symptoms.
I recognised that there must be a reason behind this illness.
Yes, we are all different, with different stories of how we got ill.
With different symptoms.
And even with different stories of how we recovered (those of us that do so).
But there is still so much in common.
It appeared to me that certain things need to be in place to make sure that
"the cause" of this illness was the real McCoy.
This is not a perfect list, and I am open for some better criteria,
but for me these were a good start:
Does it explain the symptoms?
Does it explain why certain treatments work?
Does it explain why certain treatments don't work?
Does it explain why people recover despite using different treatments?
Does it explain how people get sick in the different ways?
Does it explain why treatments that work to recover some people, don't work for others?
Is the explanation congruent with the vast majority of the research and people's experience with the illness?
