Een nieuw grootschalig onderzoek onder ME/CVS-patiënten, uitgevoerd door de
ME Association, toont wederom aan wat ME/CVS-patiënten al jaren, tot vervelens toe roepen:
- gedragstherapie (CGT) werkt niet, want het probleem zit (meestal niet) in "verkeerde gedachten",
- oefentherapie (GET) werkt vaak averechts, want inspanning doet het probleem (vaak) verergeren.
De onderstaande figuren en de oonderstaande conslusies zijn veelzeggend.
Maar liefst 74% van de (selectief) ondervraagden geeft aan dat GET de symptomen doet verergeren!
Enkele verstrekkende conclusies uit het rapport:
Cognitive Behavioural Therapy (CBT)
We conclude that
CBT in its current delivered form
should not be recommended
as a primary intervention for people with ME/CFS.
CBT courses based on the model
that abnormal beliefs and behaviours
are responsible for maintaining the illness,
have no role to play in the management of ME/CFS and
increase the risk of symptoms becoming worse.
...
However, our results did indicate that,
when used appropriately,
the practical coping component of CBT
can have a positive effect in helping
some patients
come to terms with their diagnosis and
adapt their lives to best accommodate it.
Graded Exercise Therapy (GET)
We conclude that
GET should be withdrawn with immediate effect
as a primary intervention for everyone with ME/CFS.
...
A significant number of patients had been given advice
on exercise and activity management
that was judged harmful
with symptoms becoming worse or much worse and leading to relapse.
...
We recognise that it is impossible
for all treatments for a disease to be free from side-effects,
but if GET was a licensed medication,
we believe
the number of people reporting significant adverse effects
would lead to a review of its use by regulatory authorities.
Voor het volledige rapport, klik op onderstaande afbeelding:
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