CGT GET PACE Analyse Faulkner 2016 - 1331

 

 

 

 

Faulkner:

PACE als voorbeeld van

hoe "hervormingen"

met het (bio)psychosociale model

"gerechtvaardigd" worden

 

 

 

 


 

 

 

In een uitgebreide analyse beschrijft George Faulkner hoe het (bio)psychosociale model

gebruikt wordt als rechtvaardiging voor "politieke hervormingen" (lees: besparingen) en

de invoering van "de omgekeerde bewijslast": patiŽnten kunnen beter worden, maar moeten wel willen.

 

Het boekwerkje gaat in op de claims die op basis van de PACE trial-studies gemaakt werden.

 

Aan de hand van een gedegen analyse van de cijfers en definities in studies en andere documenten

toont Faulkner aan dat er van de claims van de auteurs weinig tot niets overblijft.

 

Sterker nog, zoals onder meer Mark Vink (arts/ME-de-patiŽnt) en ondergetekende onderbouwden:

de PACE-trial uitkomsten laten zien dat CGT en GET niet effectief zijn en mogelijk zelfs schadelijk.

 

Voor de PACE trial-analyse van Faulkner, klik op onderstaande afbeelding:

 

 

 

 


 

 

 

Misleading medical research underpins disability cuts

 

Release: 14.04.2016

 

A new report from the Centre for Welfare Reform explains

how a current scientific controversy relates to

the debate surrounding welfare reform and cuts to disability benefits.

 

The 'biopsychosocial' model of disability

has played an important role in shaping recent reforms to disability benefits,

yet important claims about the value of biopsychosocial approaches

have been founded upon evidence

which was always potentially misleading, and

can be shown to have been exaggerated and

distorted in ways that

further misrepresent the reality of living with ill health and disability.

 

The biopsychosocial model has been used

to create new obligations for those suffering from common health problems,

such as

the responsibility to "recognize that the sick role is temporary, in the expectation of recovery."

 

However it is not clear that these new obligations are reasonable.

 

There is a danger that the belief

that it is acceptable to encourage 'positive' views of

ill health, disability and the efficacy of treatments

have affected the design and reporting of medical research,

encouraging unreasonable expectations of recovery.

 

A large and expensive assessment of biopsychosocial interventions, PACE,

the only such trial to have received funding from the Department of Work and Pensions (DWP),

provides a clear example of the problems

which can affect academic research and

distort our understanding of important issues.

 

This report explains

how problems with the design of this trial, and

the presentation of its results,

led to seriously misleading claims about patients' recovery rates.

 

In a Lancet commentary, reviewed and approved by the trial's researchers,

patients were classed as having fulfilled a "strict criterion for recovery"

even though the criterion used was in fact so loose

that patients could have reported a worsening of all their symptoms and

yet still have been classed as recovered.

 

Despite the problems identified with the presentation of results

the trial's team continue to fight against

releasing important data from this publicly funded research,

with pre-specified primary outcomes remaining unreported.

 

There have even been attempts

to portray Freedom of Information requests about this trial

as a form of harassment and

stigmatise patients' concerns

about the way in which

the efficacy of potential treatments are being misrepresented to them.

 

With growing numbers of the international scientific community

speaking out about the problems surrounding this trial,

the Information Commissioner ruled that

data which could correct many of the misleading claims made about the trial's results

should be released.

 

The trial's researchers and their institutions are appealing against this ruling, and

an information tribunal is now due to take place on 20-22 April.

 

Dubious claims of biopsychosocial expertise

have been used to serve the interests of influential institutions and individuals

in government, medical research and the insurance industry,

where concerns about money and reputation

will inevitably compete with concerns about public health and patients' rights.

 

While there is a growing popular awareness of

the problems with nonblinded or poorly controlled trials

being used to make unjustified claims about the value of alternative medicine,

there is also a widespread failure to acknowledge that

more mainstream rehabilitative approaches

can be built upon a similarly poor evidence base.

 

Greater honesty about this is needed,

especially as attempts to cut welfare spending lead politicians

to turn to rehabilitation as a key part of their policies on disability, and

as something which may become compulsory for those claiming disability benefits.

 

This report, written by George Faulkner,

shows the need for more critical engagement with biopsychosocial medical research.

 

There is a danger that

the lives of millions of people have been damaged

by judgments based upon inaccurate and misleading claims,

shifting power away from those suffering with ill health and disability

by presenting policies which reduce their options and income

as benevolent and empowering interventions.

 

 

Further reading

 

There are several published articles already

which draw attention to the serious flaws in this research.

 

In particular:

 

PACE: The research that sparked a patient rebellion and challenged medicine.

Results of the PACE follow-up study are uninterpretable.

An open letter to The Lancet, again.

 

 

Comments

 

Dr Simon Duffy, Director of the Centre for Welfare Reform said:

 

Misleading medical research is particularly dangerous

when politicians are looking to blame social problems on minority groups,

as they have with disabled people.

 

While it is encouraging that

some of the academic community is beginning to challenge this problem,

it is sad that so many continue to fight to protect their own interests, and

we are particularly grateful to George Faulkner for carrying out this important research.

 

 

 

The report is available to read online and download as a pdf here:

https://www.scribd.com/doc/308613502/In-the-Expectation-of-Recovery.

 

 

http://bit.ly/expect-recovery

 

 


 

Onder dankzegging aan Manja.