The Bristol Cable schetst een objectief beeld van de ontwikkelingen m.b.t. CGT, GET en PACE door
aan verschillende visies aandacht te besteden en dat gebeurt niet zo vaak als het gaat om ME/CVS.
Chronic fatigue syndrome, Bristol University, and controversial science
By Lorna Stephenson on 7th July, 2017
Trials on certain treatments of chronic fatigue syndrome, or ME,
have pitted patients against researchers, and scientists against scientists –
amid furious clashes on the validity of landmark studies into the condition.
...
Opponents,
who include scientists and CFS advocacy groups as well as people with CFS,
say GET and CBT treatments are harmful,
have been tried before to no meaningful effect, and
are only being pursued to protect the reputations of
researchers and others in the medical science establishment
who continue to study them despite them being debunked by a previous, flawed, trial.
...
Horner argues that there is evidence for the harm GET can cause.
"Patient surveys consistently show graded exercise therapy
to cause more harm than benefit," she says.
"Many of us know people who got severely worse for years after GET.
People who were relatively independent
become housebound or bedbound or have to start using a wheelchair."
...
Horner is angered by what she sees as a purposeful attempt
to discredit the patient community and deflect valid criticism of the research:
"I find the nature of these accusations quite distasteful.
Over the years 'psychosocial agenda' researchers appear to use this as a tactic
to silence all patient criticism.
It works particularly well in terms of newspaper coverage."
...
https://thebristolcable.org/2017/07/
chronic-fatigue-syndrome-bristol-university-and-controversial-science/
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