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Wall Street Journal:

patiŽnten vechten

met wetenschappers

over PACE trial data

 

 

 

 


 

 

 

In de Wall Street Journal werd gisteren melding gemaakt van de controverse
m.b.t. het vrijgeven van de onderzoeksgegevens van de omstreden PACE trial-data.

In dit artikel komen de volgende hoofdrolspelers aan het woord:

 

David Tuller stelt in een recent interview terecht

dat patienten en wetenschappers uiteraard moeten aandringen op vrijgave van de data,

maar dat de reeds gepubliceerde onderzoeksgegevens

al voldoende aantonen dat CGT en GET niet effectief blijken te zijn.

 

 


 

 

 

Patients, scientists fight over research-data access

 

Some scientists balk at disclosing details in study of chronic fatigue syndrome

 

By Amy Dockser Marcus

March 7, 2016 6:51 p.m. ET

 

...

 

Dr. Sheridan Wood [...] says she will look at the data with 'an open mind, as a scientist.'

 

...

 

Dr. Tuller wrote an extensive analysis describing methodological problems with the Pace study

that ran in October in "Virology Blog", a widely read scientific blog.

 

...

 

Patients who request data aren't subject to the same rules or controls that professional scientists are,

says Stephan Lewandowsky.

 

...

 

Richard Horton, editor in chief of the Lancet, [...] says the Lancet stands by the trial findings.

 

...

 

Dr. Coyne said the researchers changed their outcome measures after the trial began and

he wants to see if patients would have shown improve≠ment under the original criteria.

 

...

 

Tom Kindlon [...] says he agrees patient confidentiality must be protected

but that the research data he and others want access to

"is not the sort of information that would identify people."

 

...

 

 

http://www.wsj.com/articles/patients-scientists-fight-over-research-data-access-1457394712

 

 


 

Met dank aan Manja.