Sommige "experts" achten blijkbaar alle middelen geoorloofd om hun strijd te "winnen"...
Zelfs "een leugentje om bestwil", zoals het ontkennen van het feit dat een onderzochte groep patiënten zeer jong aan kanker en hartfalen overleden is
(klik hier), is kennelijk geoorloofd.
Als klap op de vuurpijl wordt de zelfdoding van Lynn Gilderdale,
een jonge vrouw die van pure ellende de dood "koos" (klik hier), als een "vermijdbaar incident" afgeschilderd.
Uiteraard is de "depressie" en de ziekte volgens deze "geleerden" te genezen met CGT/GET.
Zou gewetenloosheid ook m.b.t. gedragstherapie te genezen zijn? Ik ben bang van niet!
Defeatism is undermining evidence that chronic fatigue syndrome can be treated
Public release date: 10-Feb-2010
Editorial: Chronic fatigue syndrome
An air of defeatism exists within the medical profession
about chronic fatigue syndrome that is undermining evidence that it can be treated,
argue three senior doctors in this week's BMJ.
The recent acquittal of Kay Gilderdale,
who had been charged with the attempted murder of her 31 year old daughter Lynn, has led to blanket press coverage.
Yet Alastair Santhouse, consultant at The South London and Maudsley NHS Foundation Trust and
colleagues from Institute of Psychiatry, King's College London,
argue that the media has largely portrayed the condition as a progressive, paralysing, and commonly fatal illness,
and little has been said about the uncertainties and controversies that this diagnosis has always attracted.
While not commenting on this specific case,
the authors point out that severe presentations of
chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME)
such as that of Lynn Gilderdale are unusual,
and that, if a diagnosis of CFS/ME is made,
data clearly show that mortality is not increased.
The greatest risk to life is likely to be suicide, they explain.
And this is often linked to depression that can be effectively treated.
Treatments such as cognitive behavioural therapy and graded exercise therapy
have also been shown to work in CFS/ME and are recommended by the National Institute for Health and Clinical Excellence (NICE).
In patients with severe CFS/ME, such programmes may be prolonged,
but they can be the trigger for improvements and sometimes dramatic recovery,
add the authors.
In contrast, the alternative to treatment is often no treatment,
and this can have a disastrous effect on the patient,
who may feel that the medical profession has given up on them as a hopeless case, they warn.
Undoubtedly current treatments could be improved,
recovery may not be complete in many cases,
and access to services for those too disabled to attend hospital clinics needs to be improved, they write.
Furthermore, doctors are often uncertain about what they are dealing with, and
perhaps inevitably a breakdown of trust between doctors and the patients and their families often occurs.
But they believe that the medical profession must continue to go with the evidence in choosing treatments,
in what can be a fraught clinical situation.
"We owe it to our patients and to our professionalism to do what we can to help those with this potentially treatable condition because,
notwithstanding the difficulties, this is our primary duty," they conclude.
http://www.eurekalert.org/pub_releases/2010-02/bmj-diu020910.php
Chronic fatigue syndrome -
Defeatism among clinicians is undermining evidence that it can be treated
BMJ. 11 February 2010, doi:10.1136/bmj.c738
Santhouse AM,Hotopf, M, David AS.
http://www.bmj.com/cgi/content/short/340/feb11_1/c738
Editorials
The first 150 words of the full text of this article appear below.
The recent acquittal of Kay Gilderdale,
who had been charged with the attempted murder of her 31 year old daughter Lynn,
has led to blanket press coverage this week.
She was given a one year suspended sentence for the lesser charge of aiding and abetting suicide,
to which she had earlier entered a guilty plea.
The debate in the media has focused on the rights and wrongs of assisted suicide,
the wisdom of bringing a prosecution for attempted murder, and whether the law needs to be changed.
Yet perhaps the most striking aspect of the case from the clinician’s point of view is
the largely uncontested media portrayal of
a condition referred to as chronic fatigue syndrome or myalgic encephalomyelitis (now commonly if unsatisfactorily called CFS/ME)
as a progressive, paralysing, and commonly fatal illness.
Little has been said in the media about the uncertainties and controversies that this diagnosis has...
[Full text of this article]
Met dank aan Dean.
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