Uit een onderzoek van Caroline Maness e.a. blijkt, zoals eerder in een artikel betoogd, dat

de door de Gezondheidsraad aanbevolen 'ME/CVS' (SEID)-criteria op geen enkele wijze voldoen.

Ca. 1/5 van mensen met erkende slaapstoornissen voldoet eveneens aan de diagnose 'ME/CVS'

Eerder bleek al uit onderzoek dat circa een kwart van de 32 mensen met CVS niet aan de diagnose 'ME/CVS' voldoet (tabel 3) en dat meer dan 40% va de mensen met (verklaarde en onverklaarde) chronische vermoeidheid ten onrechte aan de diagnosecriteria voor 'ME/CVS' voldoet (tabel 3).

Door het aanbevelen van het gebruik van de SEID-criteria voor 'ME/CVS" kunnen de aanbevelingen (onbedoeld) volledig verkeerd uitpakken voor ME- en CVS-patiënten én mensen met andere ziekten.

Systemic exertion intolerance disease/chronic fatigue syndrome is common

in sleep centre patients with hypersomnolence: A retrospective pilot study.

J Sleep Res. 2018 Apr 6:e12689. doi: 10.1111/jsr.12689. [Epub ahead of print]

Maness C, Saini P, Bliwise DL, Olvera V, Rye DB, Trotti LM.

Abstract

Symptoms of the central disorders of hypersomnolence

extend beyond excessive daytime sleepiness

to include non-restorative sleep, fatigue and cognitive dysfunction.

They share much in common with

myalgic encephalomyelitis/chronic fatigue syndrome,

recently renamed systemic exertion intolerance disease,

whose additional features include post-exertional malaise and orthostatic intolerance.

We sought to determine the frequency and correlates of

systemic exertion intolerance disease in a hypersomnolent population.

One-hundred and eighty-seven hypersomnolent patients

ccompleted questionnaires regarding sleepiness and fatigue; questionnaires and

clinical records were used to assess for systemic exertion intolerance disease.

Sleep studies, hypocretin and cataplexy were additionally used

to assign diagnoses of hypersomnolence disorders or sleep apnea.

Included diagnoses were

idiopathic hypersomnia (n = 63),

narcolepsy type 2 (n = 25),

persistent sleepiness after obstructive sleep apnea treatment (n = 25),

short habitual sleep duration (n = 41), and

sleepiness with normal sleep study (n = 33).

Twenty-one percent met systemic exertion intolerance disease criteria, and

the frequency of systemic exertion intolerance disease

was not different across sleep diagnoses (p = .37).

Patients with systemic exertion intolerance disease

were no different from those without this diagnosis

by gender, age, Epworth Sleepiness Scale, depressive symptoms, or sleep study parameters.

The whole cohort reported substantial fatigue on questionnaires,

but the systemic exertion intolerance disease group

exhibited more profound fatigue and

was less likely to respond to traditional wake-promoting agents (88.6% versus 67.7%, p = .01).

Systemic exertion intolerance disease

appears to be a common co-morbidity in patients with hypersomnolence,

which is not specific to hypersomnolence subtype

but may portend a poorer prognosis for treatment response.

KEYWORDS:

Chronic fatigue syndrome; fatigue; idiopathic hypersomnia; narcolepsy;

sleepiness; systemic exertion intolerance disease

PMID: 29624767

DOI: 10.1111/jsr.12689