Nathalie Boulton, dé drijvende kracht achter de documentaire Voices of the Shadows,
liet me per mail weten dat de documentaire Voice from the Shadows tot het eind van het jaar
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Voices from the Shadows
'Voices from the Shadows'
shows the brave and sometimes heartrending stories
of five ME patients and their carers,
along with input from Dr Nigel Speight,
Prof Leonard Jason and Prof Malcolm Hooper.
These were filmed and edited between 2009 and 2011,
by the brother and mother of an ME patient in the UK.
It shows the devastating consequences that occur
when patients are disbelieved and the illness is misunderstood.
Severe and lasting relapse occurs
when patients are given inappropriate psychological or behavioural management:
management that ignores the severe amplification of symptoms
that can be caused by increased physical or mental activity or
exposure to stimuli, and by further infections.
A belief in behavioural and psychological causes,
particularly when ME becomes very severe and chronic, following mismanagement,
is still taught to medical students and healthcare professionals in the UK.
As a consequence,
situations similar to those shown in the film continue to occur.
'Voices from the Shadows' received its premiere
at the prestigious Mill Valley film festival near San Francisco in 2011,
where it won the audience award for favourite international doc.
The film has been shown in many countries and in different venues -
from parliament buildings to cinemas, universities and homes -
from the IACFS/ME conference in Ottawa 20011,
to the Stanford ME /CFS Symposium 2014.
English with subtitles in
Swedish, Dutch, Spanish, French, Italian, Czech, German, Japanese and English.
We consider this film to be unsuitable viewing for children and young people with ME.
Further info at voicesfromtheshadowsfilm.co.uk