In september 2011 vindt in Ottawa (Canada) de internationale IACFS-ME-konferentie plaats.

Zoals gebruikelijk komen uiteenlopende onderwerpen en talloze sprekers aan bod (onder).

Opvallend is de geringe vertegenwoordiging van niet-Amerikaanse (bijv. Europese) sprekers.

http://www.iacfsme.org/Conferences/2011AgendaProfessional/tabid/461/Default.aspx

September 22, 2011

Professional Workshops for Physicians and Healthcare Professionals

Workshop 1

How to Apply for Grants

Dennis F. Mangan, Ph.D.

Chair, Trans-NIH ME/CFS Research Working Group, Office of Research on Women’s Health, U.S. National Institutes of Health

Workshop 2

Treating Sleep, Pain and Fatigue in ME/CFS Patients

Charles W. Lapp, M.D.

Associate Clinical Professor, Duke University Medical Center, Charlotte, NC

Medical Director, Hunter-Hopkins Center, Charlotte, NC

Lucinda Bateman, M.D.

Adjunct Clinical Faculty, Departments of Anesthesiology, Family & Preventive Medicine, and Internal Medicine, University of Utah, Salt Lake City, UT

Director, Fatigue Consultation Clinic, Salt Lake City, UT

Workshop 3

Pediatrics and CFS/ME

Rosamund Vallings, MNZM, MB BS

Board Member, IACFS/ME

Family Physician, Howick Health and Medical Clinic, Auckland, New Zealand

Teruhisa Miike, M.D, Ph.D.

Board Member, IACFSME

Chief, Hyogo Children’s Sleep and Development Medical Research Center, Hyogo, Japan

Workshop 4

Fibromyalgia Theory and Practice

Daniel J. Clauw, M.D.

Professor of Anesthesiology, University of Michigan, Ann Arbor, MI

Workshop 5

Behavioral Assessment and Treatment of ME/CFS

Fred Friedberg, Ph.D.

President, IACFS/ME

Research Associate Professor, Stonybrook University, Stonybrook, NY

Leonard Jason, Ph.D.

Professor, DePaul University, Chicago, IL

Workshop 6

Exercise Intolerance: Guide to Management and Treatment

Staci R. Stevens, M.A.

Board Member, IACFS/ME

Founding Executive Director, Fatigue Lab, University of the Pacific, Stockton, CA

Christopher R. Snell, Ph.D.

Professor, Department of Sport Sciences, University of the Pacific, Stockton, CA

J. Mark VanNess, Ph.D.

Associate Professor, Department of Sport Sciences, University of the Pacific, Stockton, CA

Adjunct Professor, Department of Bioengineering, University of the Pacific

Adjunct Instructor, Department of Biology, University of the Pacific

Workshop 7

Fibromyalgia Assessment and Treatment

Roland Staud, M.D.

Professor, University of Florida, Gainsville, FL

Workshop 8

Treating Sleep, Pain and Fatigue in ME/CFS Patients

Charles W. Lapp, M.D.

Associate Clinical Professor, Duke University Medical Center, Charlotte, NC

Medical Director, Hunter-Hopkins Center, Charlotte, NC

Lucinda Bateman, M.D.

Adjunct Clinical Faculty, Departments of Anesthesiology, Family & Preventive Medicine, and Internal Medicine, University of Utah, Salt Lake City, UT

Director, Fatigue Consultation Clinic, Salt Lake City, UT

General Session Agenda-Friday, September 23rd

8:30 am - 8:45 am

Welcome and Introduction

Fred Friedberg, Ph.D.

President, IACFS/ME

Research Associate Professor, Stony Brook University

8:45 am - 9:15 am

Plenary session:

Gammaretroviruses of mice and their links to prostate cancer and CFS/ME

9:15 am – 10:30 am

Session: Virology Research

Session Chair: Jose Montoya, M.D.

Associate Professor of Medicine, Stanford University School of Medicine, Stanford, CA

• Blood XMRV Scientific Research Working Group: Latest Findings

Graham Simmons, Ph.D.

 

• Detection Of Anti-XMRV Antibodies In Serum of CFS Patients and Healthy Blood Donors in Belgium

Kenny De Meirleir, M.D.

 

• Detection of MLV-like Gag Sequences in Blood and Cell Lines Incubated With Plasma From CFS Patients and Controls

Maureen Hanson, Ph.D.

 

• Chronic Fatigue, Nonrestorative sleep, Musculoskeletal Pain, and Depression in a Disabled Cohort of Survivors of Acute SARS Viral Disease

Harvey Moldofsky, M.D., Dip.Psych., FRCPC, FAPA

10:45am-11:45am

Session: Virology Research and Review

Session Chair: Jose Montoya, M.D.

Associate Professor of Medicine, Stanford University School of Medicine, Stanford, CA

• Viruses and CFS/ME

Jose Montoya, M.D.

 

• The Case FOR Human Gamma Retroviruses (HGRV) in CFS/ME

Judy Mikovits, Ph.D.

 

• The Case AGAINST Human Gamma Retroviruses (HGRV) in CFS/ME

John Coffin, Ph.D.

11:45 am – 12:30 pm

Session: Treatment Advances

Chair: Rosamund Vallings, MNZM, MB BS

Board Member, IACFS/ME

Family Physician, Howick Health and Medical Clinic, Auckland, New Zealand 

• Health/Performance and Response Status of XMRV/pMRV Antibody Positive vs. Negative Chronic Fatigue Syndrome (CFS) Subjects in a Phase III Clinical Trial

David R. Strayer, M.D.

 

• Rifampin Augments the Effects of Oxymatrine/Equilibrant (oxm/equi) In Patients with Myalgic Encephalomyelitis/CFS

John K. Chia, M.D.

 

• Brief Self- Management of UCF/CFS in Primary Care: A Randomized Trial

Fred Friedberg, Ph.D.

2:00 pm – 3:00 pm

Session: Fibromyalgia: Are Tender Points Necessary? A Debate

Chair: Lucinda Bateman, M.D.

Adjunct Clinical Faculty, Departments of Anesthesiology, Family & Preventive Medicine, and Internal Medicine, University of Utah, Salt Lake City, UT

Director, Fatigue Consultation Clinic, Salt Lake City, UT

• Tender Points are Important

Roland Staud, M.D.

 

• Tender Points are Unnecessary

Daniel J. Clauw, M.D.

3:30 pm-5:30 pm

Session: Diagnosing CFS/ME; Difficult Clinical Cases

Session Chair: Nancy Klimas, M.D.

Immediate Past President, IACFS/ME

Professor of Medicine, Microbiology, Immunology and Psychology, University of Miami, Miller School of Medicine and Miami VA Medical Center

Case Presentations by:

• Charles Lapp, M.D.,

 

• Lucinda Bateman, MD,

 

• Rosamund Vallings, MNZM, MB BS,

 

• Derek Enlander, M.D.

5:30 pm - 6:00 pm

Visit Poster Presentations / Exhibits

General Session Agenda-Saturday, September 24th

8:30 am – 9:30 am

Session: Case Definitions for Research and Practice

Chair: Kenneth Friedman, Ph.D.

Associate Professor of Pharmacology and Physiology (retired)

Adjunct Instructor, Castleton State College

Research Associate, Green Mountain College

• Contrasting Case Definitions

Leonard Jason, Ph.D.

 

• Data Mining

Leonard Jason, Ph.D.

Elizabeth R.Unger, M.D., Ph.D.

9:30 am – 10:30 am

Session: Identifying Abnormalities in CFS/ME: The Importance of Exercise Challenge

Chair Staci R. Stevens, M.A.

Board Member, IACFS/ME

Founding Executive Director, Fatigue Lab, University of the Pacific, Stockton, CA

• Exercise Testing to Quantify Effects of Fatigue on Functional Capacity in Patients With CFS

Betsy A. Keller, Ph.D.

 

• The Importance of Exercise Challenge

Christopher Snell, Ph.D.

11:00 am – 12:15 pm

Session 9: The Latest Research in Immunology

Chair: Nancy Klimas, M.D.

Immediate Past President, IACFS/ME

Professor of Medicine, Microbiology, Immunology and Psychology, University of Miami, Miller School of Medicine and Miami VA Medical Center 

• Natural Killer Cell Number and Function in a Prospective Cohort of Adolescents with Chronic Fatigue Syndrome and Controls Following Mononucleosis

Benjamin Katz, M.D.

 

• Disparities In Innate and Adaptive Immune Cell Activities in Chronic Fatigue Syndrome

Ekua W. Brenu, PhD candidate

 

• Longitudinal Assessment of Adaptive Immune Regulation in Chronic Fatigue Syndrome

Ekua W. Brenu, PhD candidate

 

• Promoter DNA Methylation and Eliression of Perforin in CFS and Controls

Virginia R. Falkenberg, Ph.D.

1:30 pm – 2:30 pm

Session 10: New Developments in Pediatric ME/CFS

Chair: Teruhisa Miike, M.D, Ph.D.

Board Member, IACFSME

Chief, Hyogo Children’s Sleep and Development Medical Research Center, Hyogo, Japan

• Linking Lymphocyte Metabolites with Clinical Course in Post-Infectious Fatigue

Gordon Broderick, Ph.D.

 

• A Trial For Prevention of CCFS Onset From The View Point of Sleep Issue

Terusha Miike, M.D., Ph.D.

 

• Therapeutic Outcome by Two-Months Intensive Sleep-Wake Circadian Rhythm Treatments in Japanese Children and Adolescents with Chronic Fatigue

Seiki Tajima, M.D.

3:00 pm – 4:00 pm

Session 11: New Developments in Epidemiology

Chair: Elizabeth Unger, M.D., Ph.D.

Chief, Chronic Viral diseases Branch, Division of High-Consequence Pathogens and Pathology, National Center for Emerging and Zoonotic Infectious Diseases, Center for Disease Control and Prevention

• Natural History

Leonard Jason, Ph.D.

 

• CFS Knowledge And Illness Management Behavior Among U.S. Healthcare Providers and The Public

Dana J. Brimmer, Ph.D., MPH

 

• Profile of the Patient with Chronic Fatigue Syndrome; Elierience with a Population-Based Registry

Jose Alegre, M.D.

4:00 pm - 5:00 pm

Visit Poster Presentations / Exhibits

General Session Agenda-Sunday, September 25th

8:30 am - 10:00 am

Session 12: Research Developments in Genomics and Genetics

Chair: ?

• Eliression Patterns of miRNAs in Lymphocytes In Patients with Chronic Fatigue Syndrome

Ekua W. Brenu, PhD candidate

• Pathway-Focused Genetic Evaluation of Immune and Inflammation Related Genes in CFS

Mangalathu S. Rajeevan, Ph.D.

 

• Gene Eliression Of Sensory Ion Channels, Adrenegic Receptors and Cytokines: Potential Biomarkers for CFS and Fibromyalgia

Lucinda Bateman, M.D.

 

• Gene-Eliosure Interactions In The Etiology Of Gulf War Illness: Evidence Of Increased Vulnerability to Neurotoxicants in Identifiable Veteran Subgroups

Lea Steele, Ph.D.

 

• Comparing Gene Eliression Patterns in CFS and GWI Using the Kerr ME/CFS Platform

Lina Garcia, M.D.

10:15 am – 11:45 am

Session 13: Advances in Brain and Neuroendocrine Functioning

Chair: Andrew H. Miller, M.D.

Director, of Psychiatry and Behavioral Sciences, Emory University School of Medicine, Atlanta, GA

• Regional Grey and White Matter Volumetric Changes in Chronic Fatigue Syndrome (myalgic encephalomyelitis): A Voxel-Based Morphometry 3T MRI Study

H. Treasaden, M.B., B.S., LRCP, MRCS, FRCPsych, LLM

 

• Evidence For Reduced Aldosterone in Persons with Chronic Fatigue Syndrome

Roumiana S. Boneva, M.D., Ph.D.

 

• Interaction of Self-And Illness-Related Cognitive Processing In The Right Anterior Insula of CFS Patients: An fMRI Study

Andrew H. Miller, M.D.

 

• Decreased Basal Ganglia Activation in CFS Subjects is Associated With Increased Fatigue

Andrew H. Miller, M.D.

 

• Assessment of Regional Cerebral Blood Flow in CFS Using Arterial Spin Labeling MRI

Jonathan P. Dyke, Ph.D.

1:00 pm – 2:00 pm

Session 14: IACFS/ME Clinical Practice Guidelines: A New Primer

Guidelines Panel

Fred Friedberg, Ph.D., Rosemary Underhill, M.D., Rosamund Vallings, MNZM, MB BS, Alan Gurwitt, M.D., Leonard A. Jason, Ph.D., Lucinda Bateman, M.D., Kenneth Friedman, Ph.D.

2:00 pm – 2:30 pm

Summary of the Conference

Anthony L. Komaroff, M.D.

Simcox-Clifford-Higby Professor of Medicine, Harvard Medical School, Boston, MA

Senior Physician, Brigham & Women’s Hospital, Boston, MA

Editor-in-Chief and Publisher, Harvard Health Publications Division, Harvard Medical School

http://www.iacfsme.org/Conferences/2011AgendaPatient/tabid/466/Default.aspx

September 22, 2011

9:30 am – 9:40 am

Welcome & Introduction

Fred Friedberg, Ph.D.

President, IACFS/ME

Research Associate Professor, Stony Brook University, Stony Brook, NY

9:40 am – 10:00 am

New Developments in Possible Causes of ME/CFS

Anthony L. Komaroff, M.D.

Simcox-Clifford-Higby Professor of Medicine, Harvard Medical School, Boston, MA

Senior Physician, Brigham & Women’s Hospital, Boston, MA

Editor-in-Chief and Publisher, Harvard Health Publications Division, Harvard Medical School

10:00 am – 10:40 am

New Research on What Helps People Cope with ME/CFS

Fred Friedberg, Ph.D.

President, IACFS/ME

Research Associate Professor, Stony Brook University, Stony Brook, NY

Leonard Jason, Ph.D.

Professor, DePaul University, Chicago, IL

11:00 am - 11:45 am

Fibromyalgia: Current Status

Roland Staud, M.D.

Professor, University of Florida, Gainsville, FL

12:00 pm – 1:00 pm

Breakout Session: For parents of children with ME/CFS

Rosamund Vallings, MNZM, MB BS

Board Member, IACFS/ME

Family Physician, Howick Health and Medical Clinic, Auckland, New Zealand

Teruhisa Miike, M.D, Ph.D.

Board Member, IACFSME

Chief, Hyogo Children’s Sleep and Development Medical Research Center, Hyogo, Japan

1:15 pm - 1:45 pm

Legal Aspects of Disability

Hugh R. Scher

Barrister & Solicitor, Toronto, Canada

1:45 pm - 2:15 pm

Latest Research on the Pathophysiology of ME/CFS

Nancy Klimas, M.D.

Immediate Past President, IACFS/ME

Professor of Medicine, Microbiology, Immunology and Psychology, University of Miami, Miller School of Medicine and Miami VA Medical Center

2:15 pm - 2:45 pm

Disease and Discovery: What Have We Learned?

Annette Whittemore

Founder & President, Whittemore Peterson Institute for Neuro-Immune Disease, Reno, NV

3:15 pm - 3:45 pm

Effective Management of Activity Intolerance

Staci R. Stevens, M.A.

Board Member, IACFS/ME

Founding Executive Director, Fatigue Lab, University of the Pacific, Stockton, CA

3:45 pm – 4:15 pm

New Developments in Pharmacologic Treatments

Charles W. Lapp, M.D.

Associate Clinical Professor, Duke University Medical Center, Charlotte, NC

Medical Director, Hunter-Hopkins Center, Charlotte, NC

Lucinda Bateman, M.D.

Adjunct Clinical Faculty, Departments of Anesthesiology, Family & Preventive Medicine, and Internal Medicine, University of Utah, Salt Lake City, UT

Director, Fatigue Consultation Clinic, Salt Lake City, UT

4:15 pm – 4:45 pm

Advocacy (ME/FM Action Network)

Lydia Neilson

Founder & CEO, National ME/FM Action Network

4:45 pm - 5:30 pm

Panel Question & Answer Session

Panel includes:

Fred Friedberg, Ph.D., Anthony Komaroff, M.D., Leonard Jason, Ph.D., Hugh Scher, Rosamund Vallings, MB, BS, Teruhisa Miike, M.D, Ph.D., Roland Staud, M.D., Lydia Neilson, Charles Lapp, M.D., Lucinda Bateman, M.D., Nancy Klimas, M.D, Ken Friedman, Ph.D., Annette Whittemore