Ondanks de grote kritiek van patiënten en behandelaars op de aanpak

die door Belgische referentiecentra toegepast (klik hier en hier) wordt en

de zeer tegenvallende resultaten (klik hier, hier, hier en hier), én

het wetenschappelijke bewijs (klik hier) en patiëntenenquêtes (klik hier, hier, en hier)

die aantonen dat "revalidatietherapieën" (zoals  CGT/GET) vaak zeer nadelig uitwerken

gaan overheden in Belgie, Nederland en andere landen etc.

onverdroten verder op de doodlopende CGT/GET-weg...

In een recent verschenen artikel leveren Maes en Twisk zware kritiek op die heilloze koers.

Die kritiek wordt geïllustreerd aan de hand van konkrete patiënten en bouwt voort op

een gelijktijdig verschenen artikel over de potentiële gevaren van CGT/GET (klik hier).

Chronic Fatigue Syndrome: la bête noire of the Belgian Health Care System.

Neuro Endocrinol Lett. 2009 Aug 26;30(3):300-311. [Epub ahead of print]

Maes M, Twisk FNM.

The World Health Organization

acknowledges

Myalgic Encephalomyelitis (ME)/

Chronic Fatigue Syndrome (CFS)

to be a medical illness.

ME/CFS

is characterized by

disorders in the inflammatory and

oxidative and nitrosative stress (IO&NS) pathways.

In 2002,

the Belgian government

started with

the development of

CFS "Reference Centers",

which implement a "psychosocial" model.

The medical practices

of these CFS Centers

are defined by

the Superior Health Council,

e.g. treatment

should be based upon

Cognitive Behavioral Therapy (CBT) and

Graded Exercise Therapy (GET);

and biological

assessments and

treatments

of ME/CFS should not be employed.

Recently,

the Belgian government

has evaluated

the outcome of

the treatments at

the CFS Centers.

They concluded that

a "rehabilitation therapy"

with CBT/GET

yielded no significant efficacy

in the treatment of

ME/CFS and

that CBT/GET

cannot be considered

to be curative therapies.

In case reports,

we have shown that

patients

who were "treated"

at those CFS centers

with CBT/GET

in fact suffered

from IO&NS disorders,

including intracellular inflammation,

an increased translocation of gram-negative enterobacteria (leaky gut),

autoimmune reactions and damage by O&NS.

Considering the fact that

these findings

are exemplary for ME/CFS patients and

that GET may even be harmful,

it means that

many patients

are maltreated

by the Belgian CFS Centers.

Notwithstanding the above,

the government and

the CFS Centers not only continue

this unethical and immoral policy,

but also reinforce

their use of CBT/GET

in patients with ME/CFS

treated at those Centers.

PMID: 19855351 [PubMed - as supplied by publisher]

http://www.ncbi.nlm.nih.gov/pubmed/19855351

http://node.nel.edu/?node_id=8929