Llewellyn King spreekt in een artikel zijn verbazing uit over het feit dat patiŽnten hem zo dankbaar zijn voor het feit dat hij in zijn artikelen regelmatig aandacht besteed aan ME/CVS!
Chronic Fatigue Syndrome: Lives Interrupted
April 4, 2011 Ė 1:30 pm
In 2010, I made more friends than in all of my life.
They are scattered across the United States and around the world.
But for their sake, I wish they had never heard of me.
Sadly, my new friends know me only because I have taken up their cause.
I have written and broadcast about their plight, and they have responded by pouring out their hearts to me.
For very minor service,
I have received more gratitude, more praise and more life stories
than from anything I have written or broadcast in five decades in journalism.
My sad, suffering new friends are victims of a grossly misnamed disease: chronic fatigue syndrome (CFS).
It was once known more robustly as myalgic encephalomyelitis (ME),
which at least suggests seriousness even if it isn't quite accurate.
One correspondent told me that they are the "unburied dead".
Others said they were "living in coffins".