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NICE richtlijnen:

 

Open brieven

aan de redakteur

van the British Medical Journal

 

 

 

 


 

Naar aanleiding van de recente publikatie van

de NICE richtlijnen voor diagnose en behandeling van ME/CVS (Engeland)

verscheen onlangs een artikel in the British Medical Journal (klik hier)

 

De publikatie van dit artikel en de onderliggende NICE richtlijnen

leidde, niet verwonderlijk, al vrij snel tot reakties van patiënten en medici.

 

 


 

Enkele citaten uit brieven aan de redakteur van de British Medical Journal:

 

 


 

ME;

it is waking up in intense unbearable unbelievable pain for 14 years and knowing it's going to probably be the same forever ] not because it has to be like that but because it is being manipulated like that.

 

uit:

The reality of living with severe Myalgic Encephalomyelitis

Linda A Crowhurst (Engelse ME-patiënte)

http://www.bmj.com/cgi/eletters/335/7617/446#175682

 

 


 

It is apparent that this treatment [GET en CGT, FT] is not the treatment of choice, in fact it is detrimental to the well being of the ME patient.

 

The psychiatric psychopolitical group have used GET as a lever [breekijzer, FT] to support their theory, GET is unhelpful and unhinges [ontkracht, FT] their theory.

 

uit:

NICE and ineffective ME research

Dr. Derek Enlander (Amerikaanse arts gespecialiseerd in ME/CVS,

auteur van het Chronic Fatigue Syndrome Handbook)

http://www.bmj.com/cgi/eletters/335/7617/446#175893

 

 


 

Nijmegen claims CGT cures 70% of CFS/ME patients. In 2003 an evaluation was done by an indepent government institute called TNO

[klik hier voor het onderzoeksrapport op de website van de Steungroep, FT]...

 

....

 

"In the one year follow-up period, 17% of the population of patients with ME/CFS who were working, became disabled from work. In the same time period, 9% of the population that was disabled from work, returned to their own or another job."

 

So 9% instead of 70%, and then most of them did not go back to their own job either. That means even less than 9% was "cured" unfortunately.

So stop wasting time, effort and money in CGT…

 

uit:

CGT and getting people back at work

Tessa Vinicius (Nederlandse huisarts)

http://www.bmj.com/cgi/eletters/335/7617/446#175633

 

 


 

Als U alle ingezonden brieven over dit onderwerp wilt lezen: klik hier.