Volgens de Daily Mail spant de One Click-groep een rechtszaak aan
tegen NICE, naar aanleiding van de recente gepubliceerde richtlijnen
voor de diagnose en behandeling van ME/CVS (voor kritiek: klik hier).
Persbericht:
One Click Launches NICE High Court Action Today
PRESS RELEASE
21 November 2007
Health Advocacy Pressure Group Launches NICE High Court Action Today
The One Click health advocacy pressure group lodged formal application with the
High Court today for Judicial Review of the CFS/ME National Institute for
Health and Clinical Excellence (NICE) Guidelines. The legal team handling
this case are Saunders Solicitors LLP and Counsel Kate Marcus from Doughty
Street Chambers. We seek to get these entirely flawed Guidelines quashed and withdrawn.
In defiance of the substantial biomedical evidence submitted to its
Guideline Development Group (GDG), NICE is recommending the inappropriate and potentially dangerous
behavioural modification regimes of Cognitive Behavioural Therapy/Graded Exercise Therapy (CBT/GET)
as the only management strategy for these patients. These have been shown to do neurological ME/CFS
patients considerable harm.
By contrast, the World Health Organisation classifies ME/CFS as a
neurological illness (WHO ICD-10 G93.3) and this is accepted by the Department of Health. The United Kingdom
government is signatory to the WHO rubric and therefore must abide by this.
The British Psychological Society has publicly criticised the Guidelines
for being insufficiently evidence-based and too prescriptive in its
recommendations of therapy. Eight of the major ME/CFS charities have
declared the Guidelines as Unfit for Purpose.
One Click Group Director Jane Bryant said: "ME/CFS labelled patients,
doctors, academics, charities and groups from around the world have provided us with tremendous
support for this Judicial Review. We very much look forward to the biomedical ME/CFS evidence
being placed in the public domain in the High Court by us."
Professor Anthony Komaroff from Harvard Medical School said: "There are now
over 4,000 published studies that show underlying biological abnormalities
in patients with this illness. It's not an illness that people can simply
imagine that they have and it's not a psychological illness. In my view,
that debate, which was waged for 20 years, should now be over."
The One Click Group seeks to finally bring this debate to a most timely end
through the High Court.
Yuppie flu campaigners fight 'mental illness' label
15th November 2007, 10:51am
...
Dr Charles Sheppard of the ME Association said: "The Nice guideline is seriously flawed
because they take a 'one size fits all' approach to an illness which manifests itself in many different ways.
There is no evidence that sufferers do benefit from psychological therapies."
Dr Neil Abbot from ME Research UK said: 'There is undue emphasis in the final Nice guideline
on psycho-social strategies.'
...
http://www.dailymail.co.uk/pages/live/articles/news/
news.html?in_article_id=494200&in_page_id=1770
Court ruling sought over 'yuppie flu'
By Lucy Cockcroft and Laura Clout
Last Updated: 2:37am GMT 16/11/2007
http://www.telegraph.co.uk/news/main.jhtml?xml/news/2007/11/16/nflu116.xml
A legal battle is being launched to force the Government's health watchdog to stop
defining so-called "yuppie flu" as a mental illness.
...
The National Institute for Health and Clinical Excellence (Nice) told doctors in August that they
should prescribe psychological therapy and "graded" exercise for sufferers of ME,
also known as chronic fatigue syndrome.
...
Voor meer informatie zie de website van de One Click-groep: klik hier.
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