En weer een ME/CVS-patiënt die overlijdt aan de gruwelijke gevolgen van zijn/haar ziekte.

En ook hier moest een MEdische diagnose plaats maken voor een psychologische: anorexia.

Lois Owen was 20 kilogram toen ze stief, omdat ze te "moe" was om te eten...

Ze schreef een boek dat na haar dood door haar vader uitgegeven werd: klik hier.

Tragic tale of woman with chronic fatigue syndrome 'too tired' to eat

Monday, February 27, 2012

Derby Telegraph

"Six words and she would be exhausted." That was how Roger Owen explained his daughter's reluctance to be visited by doctors. "She just couldn't cope with any more information than that," he said. "Even her lunch took four hours to eat because chewing used up energy."

University graduate Lois Owen, 34, died after her weight plummeted to just 3st 2lbs (20kg), leaving her exhausted and barely able to move. She had battled for years with chronic fatigue syndrome and medics said she also had anorexia.

But when Lois got a chest infection in March 2009, she was too weak to fight it off and she died.

...

With anti-psychotic medication, consultant psychiatrist Dr Subodh Dave told the hearing that she "progressed well", put on weight and was discharged from hospital as an outpatient in October 2005, allowing her to return to work. She was discharged from Derbyshire Mental Health Trust completely in March 2006.

...

Lois wrote book about condition to help others

Lois Owen's love of writing and helping others is what led her to pen a book on tackling chronic fatigue syndrome.

Now her father, Roger Owen, has had it published in his daughter's memory – and says that a chronic fatigue charity has expressed an interest in selling the book.

Lois wrote chapters in her stronger years, Mr Owen said.

The book, Bed Without Boundaries, details her own battle with the syndrome and suggests therapeutic activities to help other sufferers.

...

http://www.thisisderbyshire.co.uk/Tragic-tale-woman-chronic-fatigue-syndrome-tired/story-15332461-detail/story.html