Mindy Kitei is een freelance verslaggever en docent journalistiek aan de Temple Universiteit.

Voor haar blog (CFS Central) duikt zij in de achtergronden van het nieuws rond XMRV en ME/CVS.

Zoals in de redenen waarom de positieve XMRV-studie van de NIH (nog) niet gepubliceerd is (wordt?) en de vraagtekens die gezet mogen worden bij de negatieve XMRV-studie van het CDC.

Hieronder enkele citaten uit een achtergrondartikel over de recent verschenen XMRV-studie van het CDC. Voor het volledige artikel met U haar blog bezoeken.

FDA/NIH PAPER IN LIMBO; PATIENTS UNITE

Tuesday, July 6, 2010

Mindy Kitei (patiënt):

.... insiders said that HHS can keep any government study from being published - no matter how solid - and that it is anyone’s guess whether the FDA/NIH paper will eventually be published.

Dr. Judy Mikovits:

The simple fact is that the CDC’s assays have never detected XMRV in a confirmed positive clinical sample. It does not matter the population, they could not detect XMRV if it was there.

Mindy Kitei (patiënt):

In his study, Switzer did not include that Mikovits sent positive XMRV samples to the CDC. CFS Central has learned that two other labs have confirmed the samples sent to the CDC as XMRV positive.

Mary Schweitzer (patiënt):

But the patients… are used to seeing politics, not science, from our public health agencies.

Mary Schweitzer (patiënt):

Again, if XMRV proves significant, it’s a little late to worry about getting it out of the blood supply: That horse left the barn 25 years ago when the disease exploded in cluster outbreaks across the country. But the CDC did nothing.

W.L. Karns (patiënt):

I believe we need to act quickly, before the FDA/NIH paper is killed.

W.L. Karns (patiënt):

I’m tired of being barely alive, I’m tired of being invisible, and I’m tired of being silent.

http://www.cfscentral.com/2010/07/fdanih-paper-in-limbo-patients-unite.html