In een artikel reageert Toni Bernhard op de naam "chronische vermoeidheid(syndroom)".
Another Blow to Chronic Fatigue Syndrome Sufferers
Published on November 2, 2012 by Toni Bernhard, J.D.
The misnomer "Chronic Fatigue Syndrome" once again leads to misinformation.
...
What’s in a name? Apparently a lot when it comes to Chronic Fatigue Syndrome
because, were it not for the woefully misleading label that’s been given to this debilitating illness,
I don’t see how the American Academy of Family Physicians could have begun its new
"Patient Information Sheet on Chronic Fatigue Syndrome" with this sentence:
"Chronic fatigue syndrome is a disorder that causes you to be very tired."
I’ve been diagnosed with CFS for over eleven years.
I am not "very tired." I’m not even "tired." I don’t fall asleep while reading or watching TV.
I don’t nod off while people are talking to me. I’m not tired. I’m sick.
Among other symptoms, I have the kind of sickly fatigue and malaise
that healthy people suffer from when they have an acute illness like the flu—only.
I’ve felt this way for 11 1/2 years straight. I call it "the flu without the fever."
Going back to this Patient Information Sheet, in her excellent blog,
"Occupy CFS,"
Jennie Spotila had this to say about the American Academy of Family Physicians’ statement
that CFS "causes you to be very tired":
A person with sleep apnea is tired.
A nursing mother is tired. A perfectly healthy person studying for the bar exam is tired (ask me how I know).
CFS does not make me tired. CFS causes prostration, a medical term that means a collapse from complete physical or mental exhaustion.
Using the word "tired" is not only medically inaccurate, it falsely minimizes the severity of my disease and my experience.
You can find the rest of Jennie’s analysis of the Patient Information Sheet at this
link: http://www.occupycfs.com/2012/10/17/this-is-why/.
....
I am very tired.
I’m very tired of the continued lack of serious attention given to this devastating illness.
...
http://www.psychologytoday.com/blog/turning-straw-gold
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